vialroom

#uk-ireland 2025-07-01

Tuesday43 messages8 participantstimes are UTC
Highlights from this day
  • slow.taper — rough shape of it, all as-of 2025 and all my own bills, dont treat this as a price list 22:48
  • dorm_fridge — this is the clearest anyone has ever explained this to me 22:50
  • tenpence — closing line of the conversation, that 23:47
ST

everything in this channel about pricing is a snapshot. read any figure here as the month somebody typed it

📉6

genuine question i have never been asked for id at a pharmacy for this and other members here have, so it seems to be down to the individual pharmacist

coming back to this the private quotes i collected last spring ran from about 130 to about 250 a month depending on dose, and that will have moved since, ymmv

🤝5

off label and unlicensed get used interchangeably in here and they are different. off label is a licensed product used outside its licence

a member in dublin said their pharmacy supply was steadier than mine in england, which surprised both of us

MM

for the archive unlicensed in mhra terms means there is no uk marketing authorisation for that product. it is not the same as illegal and it is not the same as approved

DF

is there actually an NHS route or is that a myth people repeat

TT

there is a route. whether there is a route where you live is a completely separate question

TT

the classic path was referral into a specialist weight management service, then prescribing from there. NICE set the criteria, the local service sets the reality

TT

i waited 22 months for a first appointment. i know people in the same country who waited five weeks

TT

22 months, and i was not the longest wait in my cohort when i finally got in the room

GB

mine was different because the tirzepatide rollout through general practice started in my area while i was waiting. phased, by priority group

so some people are now getting it without ever seeing a specialist service, and some people are still in the old queue. both are happening at once

GG

which is why any advice in here has to be dated. what was true in 2024 was already stale by mid 2025

TE

please do date your claims. this log gets read two years later by someone who thinks it is current

👍9
ST

as of mid 2025 in my part of England i was paying roughly £150 a month at a mid dose, all in, including the consultation

it went up with dose. the low doses were cheaper, the top dose was not

TT

mine was closer to £200 at the top dose and thats before you count the two months i couldnt get supply at all

ST

rough shape of it, all as-of 2025 and all my own bills, dont treat this as a price list

RouteUp-frontMonthly (mid dose)WaitCatch
NHS specialist service£0£0 (prescription charge)months to yearspostcode dependent, strict criteria
NHS via general practice rollout£0£0 (prescription charge)phased by groupnot everywhere, not yet
Private online clinic£0-25 consult£130-£220dayssupply gaps, dose-priced
Private in-person clinic£100-200 consult£150-£2501-3 weeksmore oversight, more money
DF

this is the clearest anyone has ever explained this to me

📊11🙏5
TT

there were stretches where the big chains just had nothing in certain doses, and independents had it, and the next week it flipped

GB

i drove to four branches in one saturday. found it in the fourth, in a town i had never been to

GG

the allocation systems were doing that on purpose to some extent, protecting continuing patients over new starts

TT

which is the right call and also very annoying when you are the new start

GB

i did the reverse. NHS service discharged me at the end of their programme window and i went private to keep going

GB

the discharge is the bit nobody warns you about. these services often have a defined length and then you are out

GG

that is genuinely the most under-discussed thing in this channel. plan for the exit before you need it

📌12
TT

and if you are in Ireland none of the England-specific stuff maps at all

ST

correct, different system, different reimbursement list, different pharmacy prices

TT

as i understood it in 2025 the diabetes indication was reimbursed there while the weight indication was essentially a private purchase. someone in Dublin should correct me

TT

stayed on. i told them exactly what i was doing and they were completely fine about it

be honest with your clinicians is the only real advice i have. they are not the enemy and they are not surprised